Support Groups and Educational Resources
Support groups are available through the INI to help patients and their families who are living with a neurological condition. We have also listed Web pages you can visit to learn more about neurological issues.
Balance Disorders
The Vestibular Disorders Association (VEDA) offers help to people with vestibular (inner ear balance) disorders. http://www.vestibular.org/
The National Institute on Deafness and Other Communication Disorders (NIDCD) is one of the federal government's National Institutes of Health, and is mandated to conduct and support biomedical and behavioral research and research training in the processes of hearing, balance, smell, taste, voice, speech and language. http://www.nidcd.nih.gov/health/balance/balance_disorders.html
Brain Injury
The Brain Injury Association of America (BIAA) is the leading national organization serving and representing individuals, families and professionals who are touched by a life-altering, often devastating, traumatic brain injury (TBI). http://www.biausa.org
The INI Brain Injury Support Group for people who have survived brain injury, their families, friends and professionals. For more information, call (309) 624-8575.
Brain Tumors
Illinois Neurological Institute (INI) Brain Tumor Support Group (Meet for the Mind) meets monthly at the INI Office located at 719 William Kumpf Blvd. Peoria, IL 61602 contact Abby Lotz, RN, BSN, CNRN meetforthemind@ini.org or (309) 655-6864
The American Brain Tumor Association (ABTA) exists to eliminate brain tumors through research and to meet the needs of brain tumor patients and their families. http://www.abta.org/
The National Cancer Institute (NCI) is one of the federal government's National Institutes of Health, and conducts and supports research, training, health information dissemination, and other programs with respect to the cause, diagnosis, prevention, and treatment of cancer, rehabilitation from cancer, and the continuing care of cancer patients and the families of cancer patients. http://www.cancer.gov/cancertopics/types/brain
Cerebrovascular and Stoke
The National Stroke Association works to lower the incidence and impact of stroke by developing compelling community outreach programs, calling for continued improvement in the quality of stroke patient care, and educating both healthcare professionals and the general public about stroke. http://www.stroke.org/
The American Stroke Association is a division of the American Heart Association that focuses on reducing risk, disability and death from stroke through research, education, fund raising and advocacy. http://www.strokeassociation.org/
The INI Stroke Support Group provides support for persons who have had a stroke, their families and friends. For more information, call (309) 624-8575.
Stroke Camp -- Our mission is to provide a weekend camping experience for stroke survivors and caregivers. The retreat includes education, socialization, relaxation, great food, emotional support, and fun for all. The Retreat and Refresh Stroke Camp is an opportunity for everyone to relax and get rejuvenated.
For more information, please contact us:
Phone: 866-688-5450
E-mail: info@strokecamp.org
Web address: http://www.strokecamp.com/
Headache
The American Headache Society Committee for Headache Education (ACHE) is an educational resource for physicians, health care providers and patients who seek resources and educational information on headache and face pain. http://www.achenet.org/
MAGNUM, the National Migraine Association, was created to bring public awareness, utilizing the electronic, print and artistic mediums, to the fact that Migraine is a true biologic neurological disease, to assist Migraine sufferers, their families, and coworkers, and to help improve the quality of life of Migraine and head pain sufferers worldwide. http://www.migraines.org/
Medical Psychology
The American Academy of Child & Adolescent Psychiatry is a professional medical organization of child and adolescent psychiatrists trained to promote healthy development and to evaluate, diagnose and treat children and adolescents and their families who are affected by disorders of feeling, thinking and behavior. http://www.aacap.org/
The American Psychological Association (APA), in Washington, DC, is the largest scientific and professional organization representing psychology in the United States and is the world's largest association of psychologists. http://www.apa.org/
The American Psychiatric Association is a medical specialty society recognized world-wide. Its 40,500 U.S. and international physicians specialize in the diagnosis and treatment of mental and emotional illnesses and substance use disorders. http://www.psych.org/
Movement Disorders
The Movement Disorder Society is an international professional society invested in the research and care of patients with movement disorders, including Parkinson’s disease, Tourette Syndrome and more. http://www.movementdisorders.org/
WE MOVE is a not-for-profit organization that utilizes creativity, innovation, and collaborative approaches to improve awareness, diagnosis, and management of movement disorders among people living with these conditions and the professionals who care for them. http://www.wemove.org/
Multiple Sclerosis
The National Multiple Sclerosis Society helps people affected by MS by funding cutting-edge research, driving change through advocacy, facilitating professional education, and providing programs and services that help people with MS and their families. http://www.nationalmssociety.org/index.aspx
The INI Multiple Sclerosis Support Group - For more information, call 1-800-423-5774.
Multiple Sclerosis Aquatic Exercise Program - Participants focus on stretching, joint range of motion, muscle strengthening, balance and coordination. This class is a joint effort by OSF Saint Francis Medical Center and the National Multiple Sclerosis Society. Please call toll-free 1-888-6-ASK OSF (1-888-627-5673) for more information.
Neuromuscular Disorders
The federal government’s National Institutes of Health Web page for neuromuscular disorders is http://health.nih.gov/topic/NeuromuscularDisorders
Neuro-Ophthalmology
The North American Neuro-Ophthalmology Society is a professional organization of more than 500 members who are fully trained ophthalmologists or neurologists. It seeks to promote the field of neuro-ophthalmology by supporting all forms of education, encouraging research and fostering clinical expertise. http://www.nanosweb.org/home.cfm
Neuroradiology
The American Society of Neuroradiology is a professional membership society comprised of 3,000 physicians specializing in the field of neuroradiology. http://www.asnr.org/
Physical Medicine and Rehabilitation
The American Academy of Physical Medicine and Rehabilitation is the premier medical society for the specialty of physical medicine and rehabilitation. http://www.aapmr.org/
Pituitary Disorders
The Pituitary Society is an organization dedicated to furthering the understanding of diseases of the pituitary gland. http://www.pituitarydisorder.net/helpful_links.html
Radiosurgery
The International RadioSurgery Association is an independent organization, has dedicated itself to providing educational information and guidelines on stereotactic radiosurgery for brain tumors and brain disorders to governments, regulatory agencies, insurers and referring physicians. http://www.irsa.org/
Sleep Disorders
The American Sleep Association (ASA) is a national organization focused on improving public awareness about sleep disorders and sleep health, promoting sleep medicine research, and providing a portal for communication between patients, physicians/healthcare professionals, corporations and scientists. http://www.sleepassociation.org/
Spine
The North American Spine Society is a multidisciplinary medical organization dedicated to fostering the highest quality, evidence-based, and ethical spine care by promoting education, research, and advocacy. http://www.spine.org/Pages/Default.aspx
Spinal Cord Injury Exercise Program - A place to exercise for persons following a spinal cord injury. Participants improve endurance, range of motion, strength and enjoy recreational activities. For more information please call (309) 282-1600.
